As we step into July, a time marked by brightness, warmth, and renewal, it also becomes a powerful reminder of the resilience required by individuals living with autoimmune and rheumatic conditions. At The Rheumatology Initiative (tRi Ghana) , July represents an ongoing commitment to awareness, empowerment, and holistic care across Ghana and the wider region. While the sun rises high this month, so too do the voices of patients, caregivers, and healthcare providers advocating for early diagnosis, equitable access to care, and support for the invisible struggles faced by many. 🌱 A Season for Awareness and Reflection July carries global significance in the rheumatology and autoimmune health space, particularly for conditions such as Juvenile Idiopathic Arthritis (JIA), rheumatoid arthritis (RA), lupus, myositis, and mixed connective tissue disease (MCTD). It is a time to reflect on the challenges of living with chronic pain and inflammation, and to raise awareness of early symptoms, such as persistent joint swelling, stiffness, fatigue, or unexplained fevers. At tRi Ghana, this season reaffirms the need to educate communities, reduce stigma, and encourage people to seek medical advice early when symptoms arise. Whether it’s a young child struggling to play due to joint stiffness, or an adult navigating the complexities of long-term autoimmune care, every experience matters—and every story counts. 💬 Strength in Support and Community Living with a rheumatic or autoimmune condition can feel isolating, but no one should have to walk this journey alone. Community is a cornerstone of what tRi Ghana stands for. From support groups to shared experiences and patient networks, connection can be as powerful as medicine. Peer encouragement, emotional solidarity, and information-sharing all play vital roles in empowering individuals to manage their health and find hope in their journey. Support networks also give a face and voice to often invisible illnesses, reminding society that while these conditions may not always show on the outside, they impact every part of a person’s life—from physical activity and employment to relationships and self-esteem. 🧠 The Power of Knowledge and Self-Advocacy July is also a perfect time to recommit to education. Understanding the nature of autoimmune and rheumatic conditions—from what triggers flare-ups to how medications work—is essential for long-term care. Informed patients are better equipped to manage symptoms, communicate effectively with healthcare providers, and advocate for the support they need. tRi Ghana continues to encourage access to educational materials that explain symptoms, diagnostic procedures, treatment options, and lifestyle tips tailored for conditions like lupus, RA, myositis, and more. Through reading, listening, and learning, patients and families grow stronger and more confident in managing the path ahead. 🔍 A Reminder of the Systemic Impact of Autoimmune Conditions Autoimmune conditions don’t just affect joints or skin—they impact the entire body. From cardiovascular risks to mental health concerns, and from eye complications to oral health, the systemic nature of these diseases demands a multidisciplinary approach to care. This July, it’s important to remember the importance of regular health monitoring, comprehensive wellness planning, and integrative strategies that look beyond pain relief to overall quality of life. That includes attention to diet, rest, mental well-being, and physical therapy—tools that make a meaningful difference in disease progression and daily function. 🔗 Ongoing Commitment to Holistic Support At the heart of tRi Ghana’s mission is the drive to ensure that care is not limited to prescriptions and diagnoses but is extended to the emotional, financial, and social needs of patients. Autoimmune diseases often come with recurring costs, missed work or school days, and significant stress on caregivers. A holistic approach means acknowledging those realities and working collaboratively with patients and families to find sustainable solutions. It means building bridges between patients and providers, between science and society, and between challenges and opportunities. 🌍 Looking Ahead with Hope and Purpose July is not just a midpoint in the calendar year—it is a powerful moment to pause, reflect, and realign. It is a time to amplify the voices of those living with rheumatic and autoimmune conditions, to encourage awareness and empathy in our communities, and to push for continued innovation and support in healthcare access across Ghana and beyond. At tRi Ghana, this month serves as a quiet reminder that every step taken—no matter how small—is progress. Whether you are a patient, a parent, a healthcare provider, or a friend, your role matters in building a future where autoimmune and rheumatic conditions are met with understanding, compassion, and competent care. This July, may we all embrace the strength of community, the light of knowledge, and the hope of better health. Together, we move forward. Visit www.trighana.org to learn more, explore resources, or join the movement for awareness and empowerment.

I started getting sick at a pretty young age. In class four, I was quite slow, always sick with 'fever/malaria'. My doctor at the time said I was not a Sickler, so he did not understand what was wrong. I was dealing with stomach ulcer, and then by class five, joint involvement came in. I learnt to cope with my condition, including learning to write with my left hand, in case my right couldn't, to keep up with school. The pain kept rotating from right to left, and vice versa. Everywhere hurt all the time, and schooling became difficult. My skin joined the train with scaly rashes, reddish sores, and bad 'dandruff sores' in my hair, making it fall off. I eventually cut it short by JSS. It was during one of my visits to my dermatologist at the time, now late, who realized my general weakness and joint aches, that he referred me to his daughter, a physiotherapist. She handled me for a while, but I guess she detected there was an underlying problem. So, she too referred me to a consultant physician. After many labs, scans etc., were done, I was diagnosed with rheumatoid arthritis, and then, juvenile rheumatoid arthritis due to my young age at the time. When I eventually entered senior high school, I could only endure a term in the boarding house. So, doctors advised that I stay in a day school in order to get proper care at home. I was managing quite well until final year, when things got terribly bad, and I had to miss the first term to be admitted in the hospital. It was during this time in the hospital that SLE was finally diagnosed. All in all, it took about 8 (eight) years for me to be finally diagnosed with SLE in 2008. Living with lupus for all these years has taught me to be very thankful to God always, and to appreciate everything, though bitter sometimes; but with Christ in the vessel, I smile at the storm.