Meet Our Lupus Warriors

tRi Ghana • May 20, 2024

As part of our lupus awareness month we shall share some of our stories of HOPE.

Meet Baaba, Our warrior.

My journey started in 2010 on the University of Cape Coast campus when I was in my final year, few weeks to start my end of first semester exams. It started with Malaria symptoms, joint pains and swellings of the feet, wrists and elbows. I went to the hospital and was given malaria treatment and ointment for the swells. After some few days there was no improvement but rather got worse so I reported back to the hospital where I was made to run some lab tests. The results couldn’t show anything wrong so I was just given pain killers and discharged.

I endured the pain to write my exams although it wasn’t easy with the extreme fatigue and constant headaches. On completing my exams my mum came to pack my stuff and sent me to Takoradi where we lived.

Each day of my stay home was hospital visits and appointments with different doctors and numerous lab tests. After several months there was still no diagnosis and the situation was not getting any better. My dad advised us to try herbal medication where we visited about three different herbal hospitals and also spiritual centres but all to no avail.

School reopened after some months but I couldn’t go because I was not any better. I was advised by my parents to defer my program for the next year but that was the last thing I wanted to do so I didn’t agree to it but decided to fight hard and try and complete my final semester with my colleagues. I pleaded with them and convinced them to take me to campus to register and bring me back home which they agreed. I didn’t want to communicate with my friends and colleagues because I felt very bad about myself anytime I tried to. I just kept contact with one close friend who was not even a course mate from whom I could get much information because I could trust her and she understood me.

During this period I was being taken from one Prophet to another to seek spiritual help since all the hospitals and herbal centres didn’t help. When it was time for exams I was taken to school to write the exams although I couldn’t study for exams and didn’t know what was covered and my colleagues also thinking I had deferred my programme. I sat for the exams and passed my exams by the grace of God with the little efforts I put in and was able to graduate with my mates.

After graduation in 2012, my sister decided to bring me to Accra to seek medical attention since she believed there would be a positive result trying in Accra. She took me to Nyaho Clinic where I was made to do series of tests again and the only thing noticed was blood and protein in my urine which was subject to further investigation. A different set of tests was done but nothing was noticed so I was referred to a Physician Specialist in the same hospital and on the very first appointment was diagnosed with Rheumatoid Arthritis based on the symptoms presented but I was asked to run some tests for confirmation, and when the results were ready after two weeks my diagnosis was confirmed to be Systemic Lupus.

I felt a little relieved when my diagnosis was confirmed because at least I knew what was wrong with me. But upon hearing Lupus had no cure but can just be managed I felt shattered, I felt there was no hope. The doctor explained and after reading about it I decided to have hope, stay positive and fight on for my life. The doctor told me there was a special clinic at Korle-Bu for SLE patients so I was referred to Korle-Bu where I met Dr. Dey and Rheusolute family and they made me feel having Lupus was just not the end but there was so much to live for.

I am so happy getting into contact with the Rheusolute team because they make me feel at home and they are always ready to listen and advice.

Living with Lupus has made me adapt a lot of life style changes; you always have to get a backup plan since plans can change at any time. I had to learn to know myself better, engage in less stressful activities, eat healthy and take one step at a time. Be positive at all times and keep people with positive mindset around you.

The journey with Lupus hasn’t been an easy one. Waking up every morning with pains all over and extreme fatigue, taking dozens of medications on daily basis is not easy to deal with. But accepting that this is what I have to deal with, and working towards remission makes it easier to carry it out with less stress.

Lupus can be life threatening especially when there is an organ involvement. In my case my two kidneys have been destroyed by Lupus and I’m now living on my kidney reserves and will be depending on a machine soon, as I prepare for a kidney transplant.

It’s not an easy task waking up every morning and thinking of how to raise over USD50,000 in few months for a kidney transplant but I believe there is still hope despite all I am going through and I’ve been through.

I still fight on and will continue to fight on. Even at this stage I still go about my normal activities, go to work on daily basis, carry out all duties expected of me and live my life as anybody else. Am sure if I don’t tell you about my condition you wouldn’t know.

Lupus didn’t cause any change of career plans but affected my timing, and I believe everything happens for a reason. I’m currently a final year MBA student studying finance and a Banker as well, hoping to study Law soon after my graduation.

I will not allow lupus to destroy my plans but will continue to fight hard and pursue my dreams. With God by my side and my family especially my sister being my pillar of strength, I know I will make it.

I’m very grateful for the family support emotionally and financially. They were always ready to provide me with every kind of support I have needed from onset and this is what has kept me till date.

I’m not giving way for Lupus to define my life, I will make it and I am making it.

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Love in Action for People Living with Rheumatic Conditions

By tRi Ghana • February 14, 2026

This Valentine’s month, learn how compassion, awareness, and community support can improve the lives of people living with rheumatic conditions in Ghana.

A person sleeping peacefully, symbolizing the connection between sleep and managing RA symptoms.

Sleep & Rheumatoid Arthritis — Why It Matters This February

By tRi Ghana • February 2, 2026

February is Rheumatoid Arthritis Awareness Month. Learn how sleep affects rheumatoid arthritis, and practical tips to improve rest and quality of life.

Wishing Everyone Good Health and an Amazing 2026.

By Prof Dzifa Dey • January 1, 2026

tRi Ghana wishes you a healthy 2026! Prioritize your wellbeing with our latest updates and community initiatives. Here’s to an amazing year of wellness and growth.

Santa rocking out and playing a Christmas tree like an electric guitar.

Christmas, Compassion, and Living with Rheumatic Conditions

By tRi Ghana • December 25, 2025

Raising awareness and compassion for people living with rheumatic conditions in Ghana this Christmas season.

International Men’s Day

By tRi Ghana • November 19, 2025

On International Men’s Day , we take a moment at The Rheumatology Initiative (tRi Ghana) to recognise an often-overlooked group: men living with autoimmune rheumatic diseases . Whether it’s rheumatoid arthritis, lupus, or other chronic conditions, men face unique challenges in both diagnosis and support. Breaking the Silence on Male Rheumatic Conditions Autoimmune diseases are often perceived as “women’s diseases,” but men are affected too. This misconception can delay diagnosis, as symptoms may be dismissed or misattributed. On this special day, tRi Ghana calls on everyone to raise awareness about rheumatic conditions in men, encouraging early screening and better education. The Importance of Support Living with a chronic disease is difficult—physically, emotionally, socially. For men, social stigma or cultural expectations about strength may make it harder for them to ask for help. tRi Ghana provides vital support through peer groups, education, and information, empowering men to seek help, share their experiences, and build resilience. tRi Ghana’s Role Since our founding in 2012, tRi Ghana has offered education, advocacy, and research into autoimmune rheumatic conditions. Our support groups, such as Rheusolute , create safe spaces for people—including men—to connect, share stories, and learn management strategies. Our patient assistance programme also helps with financial and medical support, covering discounted medication and free medical consultations to ensure all patients—regardless of gender—receive care. Encouraging Men to Advocate for Their Health On International Men’s Day, we urge men to listen to their bodies: if you experience persistent joint pain, stiffness, or fatigue, don’t ignore it. Advocate for your health by seeking a rheumatologist, asking for blood tests, and joining a support network. At tRi Ghana, we welcome you with open arms. Highlighting Role Models This day, we celebrate men who courageously live with rheumatic disease and also those who support loved ones in their journey. Your bravery, openness, and perseverance inspire others—and drive our work. How You Can Help Raise awareness : Share stories of men affected by rheumatic conditions on social media, using #InternationalMensDay and #RheumaticHealth . Support tRi Ghana : Donate to fund medication, research and patient support. Join our community : Attend support groups for men, or bring a male friend or family member to a session. We meet monthly and welcome all. A Message of Hope To the men living with these conditions: you are not alone. tRi Ghana stands with you. On International Men’s Day, let’s acknowledge your strength—and commit to a future where your health is seen, valued, and supported.

Rheuma Connect: Transforming Rheumatology Care in Ghana

By tRi Ghana • October 14, 2025

tRi Ghana introduces Rheuma Connect, Ghana’s first digital platform for managing rheumatic and autoimmune diseases. Download the app and take charge of your health.

Raising Awareness on Rheumatic Diseases in Ghana

By tRi Ghana • September 1, 2025

Rheumatic and musculoskeletal diseases are more prevalent in Ghana than many realize, often leading to chronic pain and disability. At The Rheumatology Initiative (TRI) Ghana, our mission is to bring hope and support to those affected by these conditions. Through education, advocacy, and patient support, we are working to improve the quality of life for countless individuals and their families. Rheumatic diseases, such as arthritis, can impact anyone, regardless of age or background. A lack of awareness often leads to late diagnosis and inadequate treatment, compounding the challenges faced by patients. Our work focuses on closing this gap by providing accurate information, connecting patients with expert care, and offering support groups where individuals can share their stories and find strength in community. By raising awareness, we can help people recognize symptoms earlier and seek the medical attention they need. We advocate for better access to rheumatological care across Ghana and work with healthcare professionals to enhance their knowledge and skills. Your support, whether through volunteering, donations, or simply sharing our message, is crucial. Together, we can build a future where rheumatic diseases are no longer a silent struggle, but a manageable condition for all.

Understanding and Managing Rheumatic Diseases in Africa

By tRi Ghana • August 11, 2025

Rheumatic diseases, which include conditions like rheumatoid arthritis, are a significant health challenge across Africa. They are often misunderstood and underdiagnosed, leading to delayed treatment and poor health outcomes. Educating the public and healthcare professionals is a crucial first step in addressing this issue. Awareness campaigns and educational programs are essential for helping people recognize the symptoms and seek help early. For individuals living with these conditions, support extends beyond medical treatment. The chronic and often debilitating nature of rheumatic diseases means that patients also need emotional, psychological, and social support . A holistic approach to patient care is vital, providing resources and guidance to help individuals manage their condition and maintain a good quality of life. This can include establishing support groups where patients can connect with others who understand their journey, as well as providing access to patient assistance programs for treatment. The work of dedicated organizations is key to building this support infrastructure. By bringing together a diverse team of professionals, from doctors and counsellors to community leaders, they can create a comprehensive network of care. Their efforts not only raise awareness but also build a resilient community for patients, offering hope and a sense of belonging. The ultimate goal is to empower individuals to live full and active lives, despite their diagnosis. To learn more visit: www.trighana.org

Living with Juvenile Idiopathic Arthritis – A Guide for Ghanaian Families

By tRi Ghana • July 24, 2025

For families in Ghana, receiving a diagnosis of Juvenile Idiopathic Arthritis (JIA) can feel overwhelming. Questions about treatment, lifestyle changes, and the future often come all at once. At tRi Ghana, we believe that knowledge is empowerment — and that children with JIA can thrive when families have the right tools and support. The Emotional Journey Hearing that your child has a chronic illness can be emotionally challenging. It’s normal to feel fear, sadness, or even guilt — but remember: JIA is nobody’s fault . Support from other parents and patient groups can make the journey less isolating. Treatment Options While there’s no cure for JIA, treatments can control symptoms and prevent long-term joint damage. These may include: Nonsteroidal anti-inflammatory drugs (NSAIDs) to reduce pain and swelling Disease-modifying antirheumatic drugs (DMARDs) to slow disease progression Biologic agents for children who don’t respond to other treatments Physical therapy to maintain flexibility and strength Treatment plans should be tailored to each child’s needs, with regular check-ups to monitor progress. Daily Life Tips for Children with JIA Stay active – Low-impact activities like swimming or cycling keep joints moving. Balanced diet – Anti-inflammatory foods such as fruits, vegetables, and omega-3-rich fish can help overall health. Good sleep routine – Rest is essential for healing and energy. School support – Teachers should understand your child’s needs, including rest breaks or adapted physical education. The Role of Family and Community Living with JIA isn’t just about medical care — it’s about creating a supportive environment where the child feels capable and included. Family encouragement, community understanding, and peer friendships all contribute to better outcomes. JIA Awareness in Ghana In many Ghanaian communities, awareness is still low. By talking openly about JIA, sharing information on social media, and attending tRi Ghana’s support events, you’re helping to break the silence and stigma. Final Message A JIA diagnosis is not the end of childhood dreams. With proper care, children can play, learn, and grow just like their peers. This July, as we mark Juvenile Arthritis Awareness Month , let’s unite to ensure no child’s potential is limited by delayed diagnosis or lack of support.

Understanding Juvenile Idiopathic Arthritis – Shining a Light This July

By tRi Ghana • July 3, 2025

Every July, the world comes together to raise awareness for Juvenile Idiopathic Arthritis (JIA) – a chronic condition that affects children and young people under the age of 16. In Ghana, awareness is especially important because rheumatic diseases are often misunderstood, underdiagnosed, or mistaken for temporary joint injuries. What Is Juvenile Idiopathic Arthritis? Juvenile Idiopathic Arthritis is the most common type of arthritis in children. “Idiopathic” means the cause is unknown, and “arthritis” refers to inflammation of the joints. JIA isn’t just about occasional aches — it’s an autoimmune condition where the immune system mistakenly attacks the body’s own tissues, leading to pain, swelling, and stiffness. Common Symptoms Persistent joint pain, swelling, or warmth Morning stiffness that improves during the day Fatigue and low energy Eye inflammation (in some types of JIA) Reduced physical activity or reluctance to walk/play These symptoms may come and go, making it difficult for parents and doctors to identify the condition early. Why Early Diagnosis Matters If left untreated, JIA can cause joint damage, growth problems, and in some cases, long-term disability. Early diagnosis and treatment are essential for: Preventing irreversible joint damage Maintaining a child’s mobility and quality of life Reducing the risk of complications such as vision problems At tRi Ghana, we advocate for early screening , especially when symptoms persist for more than six weeks. Breaking the Myths in Ghana Many people believe arthritis is a condition for the elderly — this misconception leads to delayed treatment for children. Some also turn to unverified herbal remedies before seeking medical advice, which can delay effective care. Education is the first step in changing this narrative. How You Can Help This July Spread the word about JIA in your community. Encourage parents to seek medical advice early if their child has persistent joint issues. Support tRi Ghana’s awareness programs through donations or volunteering. This July, let’s commit to making sure every child with JIA gets the diagnosis, treatment, and support they need to live a full and active life.